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Pediatrics: Ethics Seminal Articles


Kopelman AE. Understanding, avoiding, and resolving end-of-life conflicts in
the NICU. Mt Sinai J Med. 2006 May;73(3):580-6. PubMed PMID: 16758093

Luckner KR, Weinfeld IJ. Informed consent as a parent involvement model in the NICU. Bioethics Forum. 1995 Spring;11(1):35-41. PubMed PMID: 11653278.

Informed Consent

1: Sibley A, Sheehan M, Pollard AJ. Assent is not consent. J Med Ethics. 2012
Jan;38(1):3. PubMed PMID: 22174366.

2: Wilkinson D. Dissent about assent in paediatric research. J Med Ethics. 2012
Jan;38(1):2. Epub 2011 Nov 2. PubMed PMID: 22048854.

Statement--Professional Liability Insurance and Medicolegal Education for
Pediatric Residents and Fellows. Pediatrics. 2011 Aug 28. [Epub ahead of print]
PubMed PMID: 21873700.

4: Unguru Y. Making sense of adolescent decision-making: challenge and reality.
Adolesc Med State Art Rev. 2011 Aug;22(2):195-206, vii-viii. Review. PubMed PMID:

5: O'Lonergan TA, Forster-Harwood JE. Novel approach to parental permission and
child assent for research: improving comprehension. Pediatrics. 2011
May;127(5):917-24. Epub 2011 Apr 25. PubMed PMID: 21518711.

6: Unguru Y, Coppes MJ, Kamani N. Rethinking pediatric assent: from requirement
to ideal. Pediatr Clin North Am. 2008 Feb;55(1):211-22, xii. Review. PubMed PMID:

7: Kimberly MB, Hoehn KS, Feudtner C, Nelson RM, Schreiner M. Variation in
standards of research compensation and child assent practices: a comparison of 69
institutional review board-approved informed permission and assent forms for 3
multicenter pediatric clinical trials. Pediatrics. 2006 May;117(5):1706-11.
PubMed PMID: 16651328.

8: Pinnock R, Crosthwaite J. When parents refuse consent to treatment for
children and young persons. J Paediatr Child Health. 2005 Jul;41(7):369-73.
PubMed PMID: 16014144.

9: Kuther TL, Posada M. Children and adolescents' capacity to provide informed
consent for participation in research. Adv Psychol Res. 2004;32:163-73. Review.
PubMed PMID: 16986221.

10: Schor EL; American Academy of Pediatrics Task Force on the Family. Family
pediatrics: report of the Task Force on the Family. Pediatrics. 2003 Jun;111(6 Pt
2):1541-71. PubMed PMID: 12777595.

11: Simon C. Child assent and parental permission for clinical research--some
considerations. Bioethics Forum. 2002;18(3-4):36-42. PubMed PMID: 12744269.

12: American Academy of Pediatrics. Committee on Child Abuse and Neglect and
Committee on Bioethics. Foregoing life-sustaining medical treatment in abused
children. Pediatrics. 2000 Nov;106(5):1151-3. PubMed PMID: 11061792.

13: Sterilization of minors with developmental disabilities. American Academy of 
Pediatrics. Committee on Bioethics. Pediatrics. 1999 Aug;104(2 Pt 1):337-40.
PubMed PMID: 10429022.

14: Informed consent, parental permission, and assent in pediatric practice.
Committee on Bioethics, American Academy of Pediatrics. Pediatrics. 1995
Feb;95(2):314-7. PubMed PMID: 7838658.


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Emily Gilbert
Subjects: Medicine